Data will be used to help improve policy, access, resources WASHINGTON, Oct. 21, 2024 /PRNewswire/ -- Today, the National Organization for Rare Disorders (NORD) introduced the Living Rare Study, a groundbreaking multi-year research initiative designed to capture and analyze the...
National Organization for Rare Disorders (NORD) Launches the Living Rare Study - First to Measure Full Scope of Rare Disease Challenges
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